Donna Koller
Donna Koller is a professor within the School of Early Childhood Studies at Toronto Metropolitan University. She completed graduate studies at the University of Missouri-Columbia, and a doctorate degree in child development and applied psychology from the University of Toronto. Clinical positions in three children’s hospitals (Canada and US) contributed to an expertise in pediatric psychosocial care and children’s rights in health care. Her program of research consistently examines children’s own experiences and perceptions. As an adjunct scientist at The Hospital for Sick Children (SickKids), she has addressed children’s rights and perspectives on decision-making, social inclusion for children with disabilities and chronic medical conditions, the disclosure of medical errors, and children’s rights in a pandemic. As a member of the International Society for Social Pediatrics and Child Health (ISSOP), her work is guided by contemporary views of childhood and the ethical and moral imperatives set out in the United Nations Convention on the Rights of the Child (UNCRC) (1989). Internationally, she has consulted on pediatric psychosocial care and research methods with children.
Feature Project
Research interests:
- Children’s participation rights in pediatrics
- Children's perspectives on health care experiences
- Social inclusion for children with disabilities and chronic medical conditions
- Research methods with young children
Current research projects:
Project: Children's Rights in the Pediatric Operating Room: Implications for Teamwork
- Funded by: SSHRC Insight Development Grant
(Co-PI with Dr. Sherry Espin, Nursing)
Project: Dancing-bodies-moving-spaces: A radical approach to fostering movement in children with diverse physical abilities
- Funded by: SSHRC Insight Development Grant
(Co-investigator with PI Dr. Coralee McLaren, Nursing)
Project: Reconciling the social model of childhood disability with pedagogy: The effects of teacher training to facilitate friendship-building.
- Funded by: SSHRC, Insight grant.
Project: Mobilizing knowledge: Partners for social inclusion for children with disabilities.
- Funded by: SSHRC, Partnership Development grant.
Project: Words matter: Discussing childhood disability and special health care needs with parents
- Funded by: Faculty of Community Services, SEED.
Selected papers from refereed journals:
- Koller, D., Espin, S., Indar, A., Oulton, A., & LeGrow, K. (2024). Children’s participation rights and the role of pediatric healthcare teams: A critical review. Journal of Pediatric Nursing, 77, 1–12. https://doi.org/10.1016/j.pedn.2024.02.023
- Matthiesen, A., Gerlach, A. J., Koller, D., & Moola, F. J. (2024). Complicating ‘Voice’ and ‘Choice’: The Role of Child Life Specialists in Shaping Children’s Health Care Participation Rights in the Netherlands. The Journal of Child Life: Psychosocial Theory and Practice. https://doi.org/10.55591/001c.91122
- Metersky, K., Tan, V., Al‐Hamad, A., Catallo, C., Koller, D., & Patel, K. (2023). Exploration of the advanced preparation nurse‐mother role in care of children with chronic disease: A narrative inquiry. Journal of Clinical Nursing. (accepted manuscript – pending publication)
- Grech, L.B., Koller, D., & Olley, A. (2023). Furthering the person-first versus identity-first language debate, Australian Psychologist. https://doi.org/10.1080/00050067.2023.2192863
- Şenkal, E., Kurt, Ö. M., Yalçın, S. S., Koller, D., & Boran, P. (2023). Seeing the pandemic through children’s eyes: exploring Turkish children’s views on COVID‐19 pandemic by focus‐group discussions. Child: Care, Health and Development
- Koller, D., & Murphy, E. (2022). Dolls as a Rights-Affirming Early Childhood Research Method: A Scoping Review. International Journal of Children’s Rights
- Koller, D., Grossi, M., van den Heuvel, M., & Wong, P. (2022). Hiding and seeking: Children's lived experiences during COVID-19. Children and Society, 00, 1– 18. https://doi.org/10.1111/chso.12590
- Jörgensen, E., Koller, D., Raman, S., Olatunya, O., Asemota, O., Ekpenyong, BN., Gunnlaugsson, G., Okolo, A. (2022). The voices of children and young people during COVID-19: A critical review of methods. Acta Paediatr. 2022 May 24. https://doi.org/10.1111/apa.16422
- Schoeppich, A., Koller, D., McLaren, C. (2021). Children’s Right to Participate in Playground Development: A Critical Review. Children, Youth and Environments, Vol. 31 (3).
- Koller, D. (2021). Right of children to be heard. BMJ Paediatrics Open, 5(1) http://dx.doi.org/10.1136/bmjpo-2021-001161
- Koller, D., & Stoddart, K. (2021). Approaches that address social inclusion for children with disabilities: A critical review. Child & Youth Care Forum. 1-12. https://doi.org/10.1007/s10566-020-09589-8
- Koller, D., & Wheelwright, D. (2020). Disrupting the status quo: A new theoretical vision for the child life profession (external link) . Journal of Child Life: Psychosocial Theory and Practice, 1(2), 27-32.
- Koller, D., Binder, M. J., Alexander, S., & Darch, J. (2019). “Everybody makes mistakes”: Children's views on medical errors and disclosure. Journal of Pediatric Nursing, 49, 1-9. https://doi.org/10.1016/j.pedn.2019.07.014
- Cagulada, E., & Koller, D. (2019). “It’s a hearing world”: Parents’ perspectives of the well-being of children who are deaf and hard of hearing. Deafness & Education International, 22(2), 139-155. https://doi.org/10.1080/14643154.2019.1635297
- Koller, D., & Farley, M. (2019). Examining elements of children's place attachment. Children's Geographies, 17(4), 491-500. https://doi.org/10.1080/14733285.2019.1574336
- Koller, D., & Espin, S. (2018). Views of children, parents, and health-care providers on pediatric disclosure of medical errors. Journal of Child Health Care, 22(4), 577-590. https://doi.org/10.1177/1367493518765220
- Koller, D., McPherson, A. C., Lockwood, I., Blain-Moraes, S., & Nolan, J. (2018). The impact of Snoezelen in pediatric complex continuing care: A pilot study. Journal of Pediatric Rehabilitation Medicine, 11(1), 31-41. https://doi.org/10.3233/prm-150373
- Koller, D., Pouesard, M. L., & Rummens, J. A. (2017). Defining social inclusion for children with disabilities: A critical literature review. Children & Society, 32(1), 1-13. https://doi.org/10.1111/chso.12223
- Koller, D. (2017). ‘Kids need to talk too’: inclusive practices for children's healthcare education and participation. Journal of Clinical Nursing, 26(17-18), 2657-2668. https://doi.org/10.1111/jocn.13703
- Koller, D., Rummens, A., Le Pouesard, M., Espin, S., Friedman, J., Coffey, M., & Kenneally, N. (2016). Patient disclosure of medical errors in paediatrics: A systematic literature review. Paediatrics & Child Health, 21(4), 32-38. https://doi.org/10.1093/pch/21.4.e32
- Underwood, K., Chan, C., Koller, D., & Valeo, A. (2015). Understanding young children’s capabilities: Approaches to interviews with young children experiencing disability. Child Care in Practice, 21(3), 220-237. https://doi.org/10.1080/13575279.2015.1037249
- Koller, D., & San Juan, V. (2014). Play-based interview methods for exploring young children’s perspectives on inclusion. International Journal of Qualitative Studies in Education, 28(5), 610-631. https://doi.org/10.1080/09518398.2014.916434
- Koller, D., Khan, N., & Barrett, S. (2014). Pediatric perspectives on diabetes self-care: A process of achieving acceptance. Qualitative Health Research, 25(2), 264-275. https://doi.org/10.1177/1049732314551057
- Koller, D., & McLaren, C. (2012). Children's emotional responses to a paediatric hospital atrium. Children & Society, 28(6), 451-464. https://doi.org/10.1111/chso.12002
- Koller, D., & Goldman, R. D. (2012). Distraction techniques for children undergoing procedures: A critical review of pediatric research. Journal of Pediatric Nursing, 27(6), 652-681. https://doi.org/10.1016/j.pedn.2011.08.001 *Awarded most cited and downloaded paper in 2014 and 2016.
- Koller, D., Nicholas, D., Gearing, R., & Kalfa, O. (2010). Paediatric pandemic planning: Children’s perspectives and recommendations. Health & Social Care in the Community, 18(4), 369-377. https://doi.org/10.1111/j.1365-2524.2009.00907.x
Chapters in books:
- Koller, D. (2018). Anxiety and the hospitalized child: Best practices for guiding therapeutic play. In C. Schaefer & A. Drewes (Eds.), Play-based interventions for childhood anxieties, fears, and phobias (pp. 15-26). Guilford Press.
- Underwood, K., Chan, C., Koller, D., & Valeo, A. (2017). Understanding young children’s capabilities: Approaches to interviews with young children experiencing disability. In B. Kelly & B. Byrne (Eds.), Valuing disabled children and young people: Research, policy, and practice (pp. 220-237). Routledge.
- Koller, D. (2014). Hospital play dolls. In V. Johnson, J. Colwell, & R. Hart (Eds.), Steps to engaging young children in research: The research toolkit (pp. 138-140). Education Research Centre, University of Brighton.
Major invited contributions or reports:
Working paper for the Canadian Coalition for the Rights of Children:
- Koller, D., & Murphy, E. (2019). (PDF file) Social Determinants of Children’s Health: A Working Paper for the 5th/6th Review of Children’s Rights in Canada (external link) .
(PDF file) Child Life Council Evidence Based Practice Statements (external link) :
- Koller, D. (2008). Child life assessment: Variables associated with a child’s ability to cope with hospitalization. Child Life Council Evidence-Based Practice Statement, 61-65.
- Koller, D. (2008). Therapeutic play in pediatric health care: The essence of child life practice. Child Life Council Evidence-Based Practice Statement, 53-56.
- Koller, D. (2007). Preparing children and adolescents for medical procedures. Child Life Council Evidence-Based Practice Statement, 45-50.
- Blumenthal Fellowship, University of Missouri
- Superior Graduate Student Award, University of Missouri
- International Society for Social Pediatrics and Child Health (ISSOP)
- Canadian Coalition on the Rights of Children (CCRC)
- Child Rights Academic Network (CRAN)
- Association of Child Life Professionals (ACLP)